Wednesday, June 30, 2010

Talking About Lupus

I want to discuss something that I have sometimes mentioned, but on this blog I have never discussed.  I have Lupus.  A daughter of a neighbor was recently also diagnosed with Lupus, because of similar signs and symptoms to my illness.  Living in Honduras sometimes has its challenges and this is one of those things that proves difficult in Honduras so I have decided to talk about an illness that is very personal to me.

I was diagnosed with Lupus about eight years ago.  It was very difficult for me, because it meant facing the reality that my child bearing days were over and that a miscarriage of twins not only led to the diagnosis of a lifelong illness that took the life of my paternal aunt, but also meant I was infertile after having children during early years.

In Honduras not too many people know what Lupus is or how it is treated nor do they even understand what doctors must see you and how to react to the illness.  Lupus of course is characterized as a very serious autoimmune disorder that manifests in different forms and can be genetic, drug induced, or even unexplained.  In my case it is genetic and in my neighbor´s case it is unexplainable. Her Lupus is more aggressive than mine is.  I have faced extremely difficult boundaries in finding adequate treatment and access to qualified doctors for Lupus and I have to wonder how many people in Honduras go without ever being diagnosed with the disease and instead try to explain it off on other issues, fatigue is most likely related to anemia here as people tend to self medicate.  The pain in joints as either a case of flu or even arthritis.  When hair comes out they think perhaps that it is nervousness(as many ask me when I lose hair if I am a nervous person, and I tell them no I have an autoimmune disorder and they just look at me strange, but rarely ask what I mean.) Those who are close to me have learned a great deal because I get rashes from the sun on my arms and neck, but I try to stay out of the sun during the hottest part of the day and I rest during the day for a few hours(my siesta), and I take showers sometimes three times a day to keep myself cooler. 

I have found that even the pharmacists here tend to not quite understand the disorder and usually become interested when I ask for antimalarial medication and corticosteroids at the same time.  The pharmacist up the street has became an expert in knowing and learning the combinations that may help me depending on my symptoms because going to a specialist isn´t always an option here even though I live in a large city.  A nurse comes to give me a shot that understands my illness and checks on me every few days now that I am going through a flare again. 

Fighting Lupus is very difficult and even in the US people often do not understand what the illness is so imagine here where people sometimes still think that illnesses are supernaturally inspired.  I have had people in the US argue that Lupus is a pretend illness(they confuse it for things like Chronic Fatigue Syndrome or Fibromyalgia which both are real illnesses, but sometimes people do not believe it) when you tell them that Lupus can kill you they look at you like you have lost your mind.  Of course more people know now that it is a serious illness compared to ten years ago.  Then some others think that it is a disease that is always fatal, but are often surprised when you tell them that it is an illness where you can live a normal life span if you take care of yourself, but that some people die because of complications from the disorder. 

One positive thing that has came from my facing Lupus was my neighbor´s daughter being alive because of me.  Her Lupus attacked her kidneys.  She also got the rash and had the pains that I suffer and the terrible fatigue that overcomes you.  Her mom came to my house in tears and said...´I don´t know what is wrong with my daughter, help´and I went to talk to her, she told me her symptoms and what she was feeling..and I looked at her mom and told her she needed to go to the hospital. Her daughter was having a flare that involved her kidneys so they started aggressive treatment and diagnosed her daughter with Lupus.  She came home and cried and broke my heart as well to know this young lady of 24 was facing what I face every day of my life.  She said if it weren´t for me they would have just blown it off as not serious or heat rash and anemia.  I told her not to worry that the doctors would care for her and that together we would face the future.  My neighbor lost her hair and I feel for her, but it is coming back slowly and I commented that maybe it would be even more beautiful than before(she had gorgeous hair). 

I have to wonder how many illnesses or disorders in Honduras go undetected because of the lack of information on disorders.  Lupus is very common in Latinos, Native Americans, blacks, and Mediterreanean ethnicities.  It is my hope that information will lead to knowledge.

Friday, June 11, 2010

Pepe Lobo Says That Someone is Trying to Remove Him as President

I am not sure how true this is.  I haven´t heard much rumbling in news media here in Honduras like I did before Zelaya was removed.  I find it interesting and clearly he must have some inside information to be making such a statement.

He evidently has some names and is questioning why the Public ministry has not yet started investigating the situation and when they are going to investigate.  I agree this should be investigated. 

According to La Prensa Pepe Lobo has said that he has received written threats to the effect that he is going to be the victim of a coup de tat.

Tuesday, June 01, 2010

US Puts Venezuela On Black List of Terrorist Supporting Countries

What this essentially means is a block against selling any military grade material to Venezuela or trading military equipment or military exercises with the country.

The bigger picture here is that this means that the Obama administration considers Chavez a terrorist supporter and that Venezuela supports international terrorism and permits it to exist. 

I personally think that the embargo is too light...there needs to be a full embargo against this zealot!

However, my hats off to the administration this is something they got right.  I imagine a lot of it had to do with the recent videos of a Spanish reporter in Venezuela and the terrorist training camps as well as the Spanish judge making the very forward statement of state sponsered terrorism in Venezuela. 

I don´t normally like to talk about other countries on my Honduran blog, but this time I will make a definate exception considering that Chavez has made us public enemy number 1 in his book.

On other notes ...

Rafael Correa admitted that his country was wrong to deny Pepe Lobo´s plane fly over permission the other day and said that apparently he had not been consulted and that it was a mistake on the part of the aviation leaders in his country.  At least someone admits when they screw up...but I think that he only admitted it because he came under serious criticism by several countries.